
Starting this month we're going to support the many wonderful charities and non-profit organizations with a digital town hall streamed live from our websites. This month we're focusing on Lupus with a hour that will focus on the disease on Wednesday May 15th from 1-2 pm. It'll be streamed live on www.wdasfm.com, www.wdasam.com and www.power99.com keyword "community." Guest include Annette Myarick - Chief Executive Offices of Lupus Foundation of American Philadelphia – Tri State, Regina Spencer – Lupus Advocate and volunteer living with Lupus, Dr. Anapama Shahane, Assistant Professor, Division of Rheumatology University of Pennsylvania. Also joining the discussion are Bryant M. Green Always Best Care Senior Services – an organization that works with Lupus patients, Jonathan Marks – National Development Director Alliance for Lupus Research and Diomaris Gonzales – Assistant Director, Research Administration for Alliance for Lupus Research.
Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints and/or organs inside the body).
Lupus is also a disease of flares (the symptoms worsen and you feel ill) and remissions (the symptoms improve and you feel better). Lupus can be mild or serious but should always be treated by a doctor. It can truly impact the life of someone living with Lupus. Here are just some of the symptoms:
- extreme fatigue (tiredness)
- headaches
- painful or swollen joints
- fever
- anemia (caused by low numbers of red blood cells or hemoglobin, or low total blood volume)
- swelling (edema) in feet, legs, or around eyes
- Pain in the chest on deep breathing (pleurisy)
- Butterfly-shaped rash across the cheeks and nose
- Sun- or light-sensitivity (photosensitivity)
- Hair loss
- Blood-clotting problems
- Fingers turning white and/or blue in the cold (Raynaud’s phenomenon)
- Ulcers in mouth or nose
Because the symptoms mimic many other conditions - it's often misdiagnosed but with good medical care, most people with lupus can lead a full life.
In the United States alone it is believed that at least 1.5 million people -- women, men, teens, and children -- have lupus. More than 16,000 new cases are reported across the country each year.
- Lupus strikes mostly women of childbearing age (15-44). However, men, children and teenagers develop lupus, too.
- Women of color are 2-3 times more likely to develop lupus.
- People of all races and ethnic groups can develop lupus.
Please join us for this important conversation.







